Why Lyme Disease Awareness is Important

Why Lyme Disease Awareness is Important

Originally published May 14, 2016 – Updated April 21, 2017 May is Lyme Disease Awareness month.  While some may tire of the constant postings shared on social media by those of us in the Lyme community, there are many reasons we advocate so fiercely.   The following might provide a small glance into the world of chronic Lyme disease. Think for a moment of your child, your spouse or partner, a close loved one or friend.   What if they…

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So This Happened The Other Day

So This Happened The Other Day

Along this not so lovely, mysterious, and what seems to be never ending Lyme disease journey, I’ve had my share of scary and frightening “episodes”.  That is what MM (the hubs) and I refer to the sudden and unpredictable attacks that take over my body.  Throughout the years, too many episodes to count have landing me in the emergency room.  Based upon these past experiences, I have basically given up on going to the ER unless absolutely necessary.  I now…

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Coping. A Daily Battle for the Chronically Ill.

Coping. A Daily Battle for the Chronically Ill.

Coping.  A Daily Battle for the Chronically Ill. This blathering is serving a bit as a coping mechanism.   A therapy session of sorts.  It’s been quite a rough go lately.  The bed bound, higher than “normal” fevers, excessive body temperature fluctuations, extreme nausea, unrelenting fatigue, get the elephant off my chest, miserable beyond miserable, hostage in my own body – kind of rough patch.   So, basically, a Lyme disease and Babesia flare. These nasty flares pass – eventually.  Perhaps…

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Not Lyme All The Time

Not Lyme All The Time

It has been awhile since my last blathering.   I have had a few potential postings simmering on the back burner, waiting for me to get the inspiration and oomph to finish.   All in due time I suppose. Today, I feel like rambling about something other than the day to day realities of life.   Which these days can be a real snooze fest, literally.   Lyme and “friends” tend to rule the roost for me, but on a rare and…

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Finding My Way Through The Colors of Lyme – Part 2 – My Story

Finding My Way Through The Colors of Lyme – Part 2 – My Story

This is the second part of my two-part series:  Finding My Way Through the Colors of Lyme. Following up to Part 1 – The Rant, change is happening, and for the better.  In February 2016, The National Guideline Clearinghouse (NGC) removed the expired (and grossly outdated) Infectious Disease Society of America (IDSA) guidelines for treatment of Lyme disease.   Baby steps, but steps in the right direction. Lyme patients and advocates all over the country are calling for the Centers…

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Finding My Way Through The Colors of Lyme – Part 1 – The Rant

Finding My Way Through The Colors of Lyme – Part 1 – The Rant

My writings today take on a more serious tone.  Full disclosure: as most of you who follow along with my Blatherings know, I am not a professional writer, nor do I play one on TV.  I will leave the detailed reporting to the professionals.   I am merely a blatherer with a message and strong opinions. A while ago, an opportunity presented itself for me to share my story within the Lyme community.   The hope behind sharing my rather bumpy health…

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Finding Balance

Finding Balance

How quickly time seems to fly by, yet simultaneously stand still. For a while now, the days and nights have been melding into one another with very little break to differentiate the two.   These long stretches with little, if any, reprieve are still a challenge for this veteran chronic illness human. Trapped in a bedridden cycle, I spend a fair amount of time trying to stay connected with the outside world via Facebook, Instagram and Twitter.   Thank you social media!…

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Time for a Lyme Reboot

Time for a Lyme Reboot

Like clockwork as the 2016 calendar goes up on the wall, the new year’s resolutions are written – in pencil and erasable ink, of course. I too have been a new year’s resolution maker of sorts, for as long as I can remember.   Perhaps that isn’t the most reliable reference, since most days lately I can’t seem to recall what I’m doing one moment to the next.  For this point, let’s assume my memory goes waaaayyyy back to early adulthood…

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Still Weathering The Storm of Chronic Illness

Still Weathering The Storm of Chronic Illness

Still Weathering the Storm indeed. Reflecting back on how difficult times have been over the past 16+ years of this complicated health journey, the last three years have been right up there with the most challenging to overcome.  Definitely not all lollipops, rainbows, and unicorns! If you have been following along with my blathering blog from inception, then you know there’ve been many days where I’ve been bitter, angry, sad, and lost.   No sugar-coating.  There were moments I wasn’t sure I could…

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Faithfully Hanging Tough

Faithfully Hanging Tough

Life is full of peaks and valleys.   This past week for me – definitely less peak and more valley.   No real surprise.   When on my current med cycle, peak-less days tend to follow.   Although feeling lousy, weak and weary, this slippage from previous weeks improvement won’t deter nor defeat me.  My peak-bound climb shall resume.  This path I trudge – I know quite well. “If only there was a cure for what ails me,” said every Lymie on the planet….

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