Chronic Illness is a Thief

Chronic Illness is a Thief

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When I read the above meme “Chronic Illness is a Thief” (author unknown) the words resonated with me.

Every word is true.  I have been robbed of my body, my energy, my health, time with my family, time with my friends, my career, normal daily activities, my life as it used to be.  The list is endless.

Lyme Disease, Babesia, Bartonella, Mycoplasma, MTHFR gene-mutation, and a plethora of chronic autoimmune conditions have consumed my body and robbed me of the person I used to be.

I definitely would not have chosen this path, nor anticipated chronic illness would completely absorb my life. The physical, neurological, and emotional challenges continue daily.  This journey has been trying and long, and at times fearing no positive end in sight.

It has been 17 years now since my current health detour.  But my health challenges initially began over 40 years ago at the age of ten, stemming from a tick bit.  What we now know to have been the beginning of my Lyme disease and chronic illness battle.

Thank you Southwest Missouri deer ticks, and the fact there were no Lyme blood tests – reliable or otherwise – available in the mid-70’s.


Sadly, not much has improved in the Lyme testing arena.  But I digress.  That is an entirely independent rant for a future post.


Fast forward a few decades from 1977 to September 2000.  A major health relapse turned my world as I knew it completely upside down.   I will spare you the details in this posting, and try to offer a Reader’s Digest condensed version.  (You can read my full story here.)

Frankly, I would prefer to forget all of the suffering, pain, doctors, testing, ER visits, surgeries, hospital stays, and the raw and frightening reality – I could have died!


The innumerable roadblocks, frustration with physicians, and our broken healthcare system have all been beyond overwhelming at times.

There have been countless specialists, misdiagnoses, and multiple failed treatment attempts over the years.  There have also been mini-improvement periods that would provide a glimpse of what life could be like if I were healthy – genuinely healthy.  Then reality would scoff, while my body would be attacked once again by Lyme and co-infections.


These diseases are persistent, relentless, debilitating, and destructive buggers.


During the last few years of various treatment protocols, there have been bad days, miserable days, frighteningly dark days, and thankfully – some good days sprinkled in from time to time.

The less than miserable, not-so-bad, and relatively good days help me stay focused on the prize of renewed health and ultimately – remission.   And quite possibly, God’s way of helping to keep me from losing it completely!

Goodness knows I have cried more than enough tears over the past decade and a half.   My hubby has picked me up off the floor – literally – more times than either of us care to remember.  But we keep pushing forward.  As Marky May – aka MM/the hubs – eloquently says, “we knew this (treatment) was gonna suck, but we’re gonna get through it – together”!


My faith is stronger than ever, and I am truly blessed with A ROCK of a husband.  As well, I am thankful to be surrounded by immense love and support from my family and friends. For this I am, and will always be internally grateful.

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HEALTHIER DAYS ARE COMING!

There are days yet to be spent living life, not feeling miserably ill, housebound and bedridden. Days of endless energy; being outdoors; enjoying nature and the glorious sunshine; going for walks; playing golf with the hubs.  Days of being able to travel to visit family and friends; feeling like a “normal” person; being productive.  Days of working out and being fit again, as my muscles have been on an extended holiday for quite a long while now.  Too long!


Being weak and weary is growing old, to say the least!


I remain hopeful and steadfast there are endless days ahead of me – to be spent laughing and enjoying life to the fullest.

I BELIEVE THESE DAYS ARE COMING!


So, yes, Chronic Illness is a Thief!   However, a revised and hopefully improved, newer yet older, weaker but stronger me will make a debut one of these days in the not so distant future.

I’m just under construction!


Until my next Blathering – for everyone fighting their own chronic illness battle, please remain hopeful and never give up your fight.

Don’t let illness steal your joy!

Terry💚The Blathering Lymie

#Lyme #Lymedisease #Babesia #Bartonella #Mycoplasma #MTHFR #Chronicillness #ChronicIllnessIsAThief #HealthierDaysAreComing #ImJustUnderConstruction #WeakAndWeary #LymeWarriorStrong #LivingTheLymeLife #LifeOfALymie #LymeDontKillMyVibe #DontLetillnessStealYourJoy #TurnPainIntoPurpose #BlatheringsOfALymie #ColorMeLyme

* Updated June 2017

12 thoughts on “Chronic Illness is a Thief

  1. One thing that took me awhile to realize is that I am STILL the same person inside. I don’t always feel like it and I still pine for the “old me”, the body I had that never hurt and even just to have the ability to leave my house or walk…but I am still old me. Those endless days will happen. Never ever lose hope.

    1. Hello Genevieve. Such a lovely assessment. We are still the same people. 🙂 Living with the challenges of decades of chronic illness does alter our lives. Not allowing the illness to steal our happiness and joy is the key, at least for me. Thank you for your encouraging words. I will never lose hope, and I am a fighter! Hoping you are finding your way to improved health. Thank you for taking the time to read my blog.💚💚💚

  2. Next January, I’ll hit the halfway mark: 19 years before the illness and 19 since. So it’s hard to say how much of the old me remains. She had some issues to be sure, so there were a few (very dim) silver linings that came from it, like therapy. But I’ve built this life in the past 19 years, so other than missing days where I could get by well on 6 hours sleep and be out and about for more than 3 hours without difficulty… This is who I am. It has been. I’ve spent the 13ish years (finally) learning to work within this new reality and figure out who I am amid the limits. So I don’t know that my illness stole who I was. I think it just reshaped what was already there, hardening and softening various aspects — for better or worse.

    1. Well said Abigail! Coping with illness for so many years changes the who we once were, but shapes the who we are today. As Genevieve commented, we are still the same people – deep down inside. Finding balance and acceptance of the person illness has helped me become is part of my personal journey. Stay strong in your fight. Wishing you pain free and healthier days ahead. 💚💚💚

  3. Thank you for articulating the struggles of a long-time lymie. It’s daunting to have to deal with this disease, day in and day out, year after year. It robs us of so much, and yet, we have so much to keep fighting for. Much love to all those in the trenches.

    1. Kelly, thank you for your kind thoughts and comments. The challenges we face are truly daunting and overwhelming at times for certain. As we persevere and continue to fight, our strength will one day overpower our illness(es). Thank you for reading my post, and I hope you will continue to follow along with my journey – our journey in this Lyme disease battle. Thank you for sharing your love with others. Wishing you improved health. 💚💚💚

  4. Thank you so much for this! I was diagnosed in March of this year with Late Stage Lyme, but I have been sick for over 18 years. This post touched my heart. I can identify with all of it. Wishing you good health and happiness in the near future! Valerie

    1. Valerie – Thank you for your kind words and well wishes. I am truly grateful my blog post touched you, but I am sorry to learn you have been struggling and suffering for so many years. Lyme disease and coinfections are such debilitated diseases – something I wish no one had to endure. We can only hope that research and improvements in treatment will continue to gain momentum. Thank you for reading my post. I greatly appreciate making the connection to a fellow Lyme Warrior!💚 Please feel free to reach anytime! Wishing you improved health and much happiness. 💚💚💚 – Terry

  5. Thank you Terri ,,
    I have had LYME since 70’s as well ..Your story was like you were writing my Life..
    Let us all PRAY for changes soon.. xoxox

    1. Thank you, Barb, for taking the time to read my Chronic Illness is a Thief post. I am truly sorry to learn you too have been suffering for decades with this destructive and debilitating disease. Hoping you are finding your way to improved health. Sending healing hugs your way.💚💚💚 -Terry

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