When I read the above meme “Chronic Illness is a Thief” (author unknown) the words resonated with me.
Every word is true. I have been robbed of my body, my energy, my health, time with my family, time with my friends, my career, normal daily activities, my life as it used to be. The list is endless.
Lyme Disease, Babesia, Bartonella, Mycoplasma, MTHFR gene-mutation, and a plethora of chronic autoimmune conditions have consumed my body and robbed me of the person I used to be.
I definitely would not have chosen this path, nor anticipated chronic illness would completely absorb my life. The physical, neurological, and emotional challenges continue daily. This journey has been trying and long, and at times fearing no positive end in sight.
It has been 17 years now since my current health detour. But my health challenges initially began over 40 years ago at the age of ten, stemming from a tick bit. What we now know to have been the beginning of my Lyme disease and chronic illness battle.
Thank you Southwest Missouri deer ticks, and the fact there were no Lyme blood tests – reliable or otherwise – available in the mid-70’s.
Sadly, not much has improved in the Lyme testing arena. But I digress. That is an entirely independent rant for a future post.
Fast forward a few decades from 1977 to September 2000. A major health relapse turned my world as I knew it completely upside down. I will spare you the details in this posting, and try to offer a Reader’s Digest condensed version. (You can read my full story here.)
Frankly, I would prefer to forget all of the suffering, pain, doctors, testing, ER visits, surgeries, hospital stays, and the raw and frightening reality – I could have died!
The innumerable roadblocks, frustration with physicians, and our broken healthcare system have all been beyond overwhelming at times.
There have been countless specialists, misdiagnoses, and multiple failed treatment attempts over the years. There have also been mini-improvement periods that would provide a glimpse of what life could be like if I were healthy – genuinely healthy. Then reality would scoff, while my body would be attacked once again by Lyme and co-infections.
These diseases are persistent, relentless, debilitating, and destructive buggers.
During the last few years of various treatment protocols, there have been bad days, miserable days, frighteningly dark days, and thankfully – some good days sprinkled in from time to time.
The less than miserable, not-so-bad, and relatively good days help me stay focused on the prize of renewed health and ultimately – remission. And quite possibly, God’s way of helping to keep me from losing it completely!
Goodness knows I have cried more than enough tears over the past decade and a half. My hubby has picked me up off the floor – literally – more times than either of us care to remember. But we keep pushing forward. As Marky May – aka MM/the hubs – eloquently says, “we knew this (treatment) was gonna suck, but we’re gonna get through it – together”!
My faith is stronger than ever, and I am truly blessed with A ROCK of a husband. As well, I am thankful to be surrounded by immense love and support from my family and friends. For this I am, and will always be internally grateful.
HEALTHIER DAYS ARE COMING!
There are days yet to be spent living life, not feeling miserably ill, housebound and bedridden. Days of endless energy; being outdoors; enjoying nature and the glorious sunshine; going for walks; playing golf with the hubs. Days of being able to travel to visit family and friends; feeling like a “normal” person; being productive. Days of working out and being fit again, as my muscles have been on an extended holiday for quite a long while now. Too long!
Being weak and weary is growing old, to say the least!
I remain hopeful and steadfast there are endless days ahead of me – to be spent laughing and enjoying life to the fullest.
I BELIEVE THESE DAYS ARE COMING!
So, yes, Chronic Illness is a Thief! However, a revised and hopefully improved, newer yet older, weaker but stronger me will make a debut one of these days in the not so distant future.
I’m just under construction!
Until my next Blathering – for everyone fighting their own chronic illness battle, please remain hopeful and never give up your fight.
Don’t let illness steal your joy!
Terry💚The Blathering Lymie
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* Updated June 2017